Caregivers need care too. (2018). Exceptional Parent, 48(10), 34-35.
This month we are sharing a periodical from The Exceptional Parent. This periodical shares results from a short survey conducted on 17 families about respite care. Not only does it share some qualitative statements made by parents about respite care, but it also introduces a Respite Care Notebook created by the Child Neurology Foundation, which has fully customizable forms for parents and respite care providers to fill out and utilize!
Here’s what the parent’s had to say about respite care:
“Respite caregivers have helped my son participate in fun activities.”
“We get a chance to have a break and our son has a chance to meet new people and form other relationships outside his own family. Even though he is nonverbal and has severe and profound intellectual impairment, it is very obvious to us that he enjoys his time in respite care.”
“Respite care expanded our circle of caring adults capable of providing high quality care for our son.”
The Respite Care Notebook:
It is a tool to help guide the respite care provider in caring for your child. It includes fully customizable forms where you can fill out information about your child that the respite care provider should know. The periodical mentions that the notebook might also help remind other family caregivers of changes in medication or routine. It can also help build a record of the child’s care, growth, and use of respite services.
If you’re interested in learning more about the Respite Care Notebook, you can follow this link: https://www.childneurologyfoundation.org/programs/respite-care/
*Journal subscription is required to access this featured article.*