The BREAK (Building Respite Evidence and Knowledge) Exchange monthly e-newsletter is developed and distributed by the Whitmore Research Team at the University of Wisconsin–Madison School of Nursing.
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BREAK Exchange Updates
Upcoming BREAK Exchange Webinars
November 4, 2020 10:00-11:00 AM CST Focus on Equity and Diversity in Respite Research
Dr. Whitmore will share practical tips and engage attendees in discussion about how to build more inclusive research teams, strengthen partnerships with key stakeholders, and ensure respite research is conducted with a focus on equity and diversity.
Presenter: Kim Whitmore, PhD, RN, CPN – Assistant Professor, School of Nursing, University of Wisconsin – Madison (Email: email@example.com)
The link to the Webinar event is here
December 9, 2020 10:00-11:00 AM CST “Co-creating, commissioning and delivering personalised short breaks: observations from research, policy and practice”
There is a growing policy impetus to promote carer well-being and resilience through the provision of personalised short breaks, however, understanding of what makes for a successful short break is limited. This webinar considers findings from a recent scoping review mapping the evidence base relevant to personalised short breaks for carers for older people, including those living with dementia. Key evidence gaps and priority lines of inquiry to shape a future research and practice development agenda are identified.
New research findings from an ongoing project, addressing some of the key evidence gaps from the scoping review, are also shared. Findings offer insights into some of the challenges and opportunities associated with planning, commissioning and delivering personalised breaks provision for carers supporting someone living with dementia. The interplay between local, cultural and political factors in shaping the landscape of breaks provision is highlighted.
Diane Seddon, Reader in Social Care, Centre for Ageing and Dementia Research, DSDC Wales Research Centre, School of Health Sciences, Bangor University (email: firstname.lastname@example.org)
Maria Caulfield, Wales School for Social Care Research PhD Fellow, DSDC Wales Research Centre, School of Health Sciences, Bangor University (email: email@example.com)
The link to the Webinar event is here
Voluntary National Respite Guidelines for Providing and Receiving Respite During the Pandemic
As the COVID-19 pandemic continues to evolve, we encourage you to check out the Voluntary National Guidelines developed by ARCH. We highly recommend using the Decision Guides and sharing this resource with the families you work with. The guidelines can be downloaded here. You can watch a recorded webinar to learn more about the guidelines here.
Take leadership in the BREAK Exchange
We are looking to develop a formal steering committee for the BREAK Exchange! If you are interested in learning more about this opportunity, please email us at firstname.lastname@example.org
Join the #CaregivingDuringCovid Campaign!
We are continuing the #CaregivingDuringCovid campaign! Congratulations to our winners Lauren and Jerry! Although the contest is over, we still want to see what caregiving looks like to you in these times. Please continue to share what caregiving looks like with many things changing in our society. To participate in this campaign, visit our Facebook, Twitter, or Instagram pages, and post what caregiving looks like for you!
Join our Slack Workspace
We now have a Slack workspace where you can easily have discussions on respite care and meet colleagues to collaborate with! To join the workspace, follow the instructions here
to get involved.
ISBA 2021 has been rescheduled for June 22 – 25, 2021 in Madison Wisconsin,USA! Please visit http://www.isba.me/
for updates. Early bird registration is now open!
Supporting Families of Individuals With Autism Spectrum Disorders: Developing a University-Based Respite Care Program
A university in Pennsylvania developed a University-based, non-emergency in-home respite care program for individuals with Autism Spectrum Disorder (ASD) under 22 years of age. Undergraduate students studying special education, secondary education, elementary education, psychology, communicative disorders, and kinesiology were recruited and trained. A total of 67 families received respite from 87 trained volunteers.
The program described in this article was founded on the following assumptions:
- Traditional respite care training consists of medical models that include medication administration, medical lifts and transfers, and other medical procedures often associated with serving individuals with physical disabilities or chronic conditions.
- Autism, as a developmental disorder characterized by deficits in language, social, and behavioral domains, differs from many medical-based disorders typically served during traditional respite care. Individuals with autism may display repetitive or restrictive behaviors as well as challenging behaviors that may occur with greater frequency and higher intensity than other children (American Psychiatric Association, 2004). These behaviors may be the result of communication deficits inherent to the disorder.
- Behavioral-based interventions are considered evidence-based practice in the treatment and care of individuals with autism.
- Training in autism and behavioral-based treatments is necessary to sufficiently meet the needs of these individuals.
The purpose of this project was threefold:
- To meet the needs of the effects of documented ongoing stress for families caring for individuals with autism spectrum disorders by providing consistent, short-term, nonemergency, home-based respite care.
- To provide the geographic area with a behavioral based respite care program as opposed to the common medical model.
- To provide undergraduate students opportunities to apply knowledge and skills learned in training and undergraduate studies to real world situations such as working directly with families.
This article can be found here