The BREAK (Building Respite Evidence and Knowledge) Exchange newsletter at the University of Wisconsin–Madison School of Nursing.
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Welcome to the BREAK Exchange
We’re beginning our University of Wisconsin – Madison Global Health Institute 1-year grant for us to further develop the BREAK Exchange! We will be posting more frequently on Facebook and Twitter, sending monthly newsletters, and facilitating quarterly webinars to share the latest news on respite. We look forward to being able to grow this project and help improve respite systems around the world!
New Collaboration between Poland and Spain
Catalan and Polish short break exchange proven again the value of creating links between ISBA community members.
On June the 5th 2019 Imago Foundation team hosted the Province of Barcelona representatives, Temporary Placement Services and Respite Care Department (Spanish: Gerencia de Serveis Residencials d’Estades Temporals i Respir). During an international conference held in Wroclaw Polish audience, nongovernmental service providers and local authorities learned about a unique for Spain Catalan short break program.
The Residential Services for Temporary Stay and Respite currently have two respite programs (one for the elderly, with 205 operational vacancies, and another for people with intellectual disabilities with 32 vacancies) and a third program of Emergency service for the elderly (36 vacancies). Coming from an ancient institution they converted in the late 90’s into short-stay services. Their mission is to provide basic social services in the province of Barcelona, either temporary residential stays to support families who care for dependent people by providing them time off, or to take care of older persons abandonment, helplessness or hopelessness.
May BREAK Exchange webinar
On May 15, 2019, BREAK Exchange hosted an introductory webinar to introduce everyone to the team, our mission, and our plan for the future. The webinar can be found here. We appreciate you taking the time to watch the presentation and would love any feedback in this survey.
We will be facilitating quarterly webinars, if you would like to host one or have a topic for a future webinar please reach out to us at email@example.com.
Ateş G, Ebenau AF, Busa C et al.. ‘Never at ease—family carers within integrated palliative care: a multinational, mixed method study. BMC Palliat Care. 2018; 17(1):39. https://doi.org/10.1186/s12904-018-0291-7.
This article compiles interviews of many caregivers of people in palliative care and documents their attitudes on caring for their family members. Caregivers found these duties both very distressful and rewarding:
“I was in a different world really. I’d been caring for him for so long that I think my… my own self had kind of gone into the background … I’ve lost a lot of weight because I suppose I haven’t been looking after myself at all. I mean I’m not aware that I’m not looking after myself but obviously it’s taken its toll, which is bound to happen.”
“I am helping as much as possible with everything she needs. And when she asks me, I say to her “honestly, I do so with love”. I wouldn’t want it any other way, although it is tough.”
The families that received respite found relief in the burden of caring for their family members, as well as a bond with the respite providers.
You can access the full article here.